Relationships of care with pediatric patients requiring long-term care
Author
Shroff, RiaOther Contributors
Campbell, Nancy D. (Nancy Dianne), 1963-; Akera, Atsushi; Velho, Raquel; Costelloe-Kuehn, Brandon James;Date Issued
2020-05Subject
Science and technology studiesDegree
MS;Terms of Use
This electronic version is a licensed copy owned by Rensselaer Polytechnic Institute, Troy, NY. Copyright of original work retained by author.; Attribution-NonCommercial-NoDerivs 3.0 United StatesMetadata
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Observing care relationships for pediatric patients in long-term care facilities provides important insight into caregiving practices, notions of independence and autonomy, and communication practices. Caregivers may fulfill medical or emotional needs of the child in the form of immediate medical needs, various mental and physical therapy goals, emotional and physical growth, and affection. Care relationships consist of the child, their medical equipment, and caregivers. These actors must learn to communicate needs, wants, and desires with one another through the course of many interactions to negotiate personal choices and optimize power and decision-sharing between one another. Nonverbal familiarity with one another in such a relationship is essential in order to rapidly address emergencies at certain times, but also to facilitate smooth movement from one task to another. Bonds between children, their equipment, and caregivers are formed through maintained association with one another so that minor nuances in gesticulation can convey major meaning. Cultivation of these bonds over time can improve comfort and quality of care for the child. Previous studies have focused independently on either the blurring or cementing of boundaries in relationships in singular fields of care work such as human development, patient-centered care, or disability care. Ethnographic fieldwork around this population allows for examination of the intersection of these different fields of study. Observation of dynamics of care relationships in this paper seek to inform caregiver training practices and medical device design of the future to provide the best care for patients both within this patient population and outside of it.; Keywords: Relational ontology/autonomy, Cyborg theory, Human development, Patient-centered care, Care work, Disability studies, Power dynamics, Dynamic decision-making, Risk/harm reduction, Everyday Resistance, Product Design, Medical Education;Description
May 2020; School of Humanities, Arts, and Social SciencesDepartment
Dept. of Science and Technology Studies;Publisher
Rensselaer Polytechnic Institute, Troy, NYRelationships
Rensselaer Theses and Dissertations Online Collection;Access
CC BY-NC-ND. Users may download and share copies with attribution in accordance with a Creative Commons Attribution-Noncommercial-No Derivative Works 3.0 License. No commercial use or derivatives are permitted without the explicit approval of the author.;Collections
Except where otherwise noted, this item's license is described as CC BY-NC-ND. Users may download and share copies with attribution in accordance with a Creative Commons Attribution-Noncommercial-No Derivative Works 3.0 License. No commercial use or derivatives are permitted without the explicit approval of the author.